Sandwich filling
It’s the small things
Poppy was born tiny and drew gasps of gorgeousness with her small, compact, perfect form. She was snug, sweet, and sassy. Clothes draped her little figure with concern, always a year at least in size below her actual age…. as I was shocked the other day to realise, Ruby at 6 months was comfortably wearing an outfit Poppy wore for a photo on the wall when she was 13 months old. But cutesy became concern when we realised small and sweet was one thing, but too tiny to get on a toilet aged 3, too small to get a bike for her birthday, too small to get up on the bed aged nearly four was actually a very big thing instead. Other things made us worry too – her popensity to go to the loo a lot, and constant complaints of a sore tummy.
We took her to an Endocrinologist who confirmed our fears – she barely makes it onto the centile chart, and is way below the range she should fit into as our daughter. Big needles went into her wee arms and blood was taken for nurmerous tests. An X ray was taken of her left wrist which told us that despite the fact she will be 4 next week, she has the bone age of a two and a half year old. Apparently this is good. She may be four and look two and a half, but she has the potential to grow. The not so good news is that something is delaying or stopping her development. She is ‘failing to thrive’.
That ‘something’ appears to be Gluten. Ghastly gluton apparently is poisoning her – although she has to have a biopsy to confirm but it ticks all the boxes. So, for starters that’s bread, pasta, cereals, chocolate, biscuits, cakes, processed foods, sweets, and pretty much most things except fresh fruit and veg (which thankfully she relishes). Once she’s confirmed to have Coeliac disease she begins a life-long avoidance of all mainstream foods. Frankly I’ll do whatever it takes to give her the best diet I can, but all I can think about it eating out, going abroad and worst for her – having to avoid buns, cake, crisps and pasta at parties and forever question what she eats. But, if it gets her healthy and well again, we’ll do what we have to. Unfortunately we’ve been told it’ll take upto 12 months to get the biopsy done. Twelve months during which we have to continue to poison her, continue to watch her pain, continue to flush away her nutrition down the toilet with her poo as her body can’t process it properly with gluten in her system. Twelve months? Are they mad? Needless to say, we’ll be taking her abroad if we have to. She’s small and sweet, and snug and sassy and smiley and sensational. She has character ten times her height, and no matter what happens now with her size, she’ll always, always, always be our perfect package.
Scooter Girls
Pain and pleasure
Opposites attract
Child’s Play
I’ve talked about my inner child before – about the desperate diva throwing toddler-esque tantrums, spitting out my dummy when I’m faced with endless, thankless, relentless demands when all I want to do is hide under my duvet, quiet and alone. Recently my inner gargoyle has raised her ugly head (and voice) more than I care to remember (will my kids? is the question that keeps me awake some nights). The overwhelming overwhelmingness of my life right now is giving my spoilt brat inside a sustained sugar hit. All that new baby neediness, and the responsibilities of my mum’s illness has me screeching up the walls some days. And then last week on Mother’s Day I read an article by Eleanor Mills in the Sunday Times. It was about this modern generation of spoilt brats, pissed off with parenting, done in by the demands, and resentful of relentless crappy work. It got me thinking. This is what I signed up for. I wanted a busy family, a noisy household. The last six months as I’ve struggled with three under the age of 6, my mum’s voice plays over in my head, “well, you wanted three!”. It was my choice. And I wouldn’t change it. And I don’t know whether it was the article, or some level of acceptance with my mum’s situation, or the fact that at six months I’m finally getting to grips with this baby lark, but I’ve tentatively realised my inner gargoyle isn’t so petulant these days. In fact, my inner child has been having a bit of a field day of late – in a good way. I’ve been bouncing on the trampoline with gay abandon, freewheeling on my bike down the road, singing our Everything Has To Be a Song Days with gusto and generally remembering how to be a fun mum again. Oh the gargoyle is only resting no doubt, but I hope she has taken a permanent back seat. I hope I am slowly stumbling out of the haze of the last 6 months, and beginning to see life again through the eyes of a child, and the heart and maturity of a mother.
Flower Power
No-one told the kids!
ungodly ways
It’s at times like these, I wished I believed in a god. Then I could shout and rant at him / her / it for the horribleness of my life right now. I do believe in the power of prayer (postive thought anyway), the spirituality of goodness and the shock and awe of nature. She / he / it should be admired, praised, recognised everywhere, and of course as we’ve seen in the last couple of days, respected.
But I can hardly blame the wind and the rain for my current troubles. Forgetting the fact my mum had a massive stroke that devastated her life – and mine, and the fact I am struggling with a new baby, let me list just a little of the crap that the universe has thrown my way the last 5 months that have left me feeling shattered:
- mastitus – twice
- gum infections – twice
- snowed in – twice
- chest infections – you got it, twice times 3 girls
- a week in hospital with my baby on oxygen and a feeding tube
- car breakdown in pouring rain and two kids and baby in car
- a leaking roof
- 10 nights out of 165 with 6 hours sleep (the rest were far less)
- weeks with the girls, weekends with my mum
and now…. to cap it all… the baby has a vomitting and diarrhea bug. I had to abandon my visit to mum as I was so busy wiping up Ruby’s vomit I had no time to sit with her. So at this point in the game, I’d be shouting up at it / her / him to GIVE ME A BREAK!
I have always been rather optimistic. Definitely a half-glass full girl. I am struggling at this stage to find anything in the glass at all. I even find it hard to believe that something won’t happen to stop us going on holiday tomorrow – to Morocco (yes I know, but we booked pre- facebook revolutions!). So instead I will say instead, I’m off on holiday tomorrow for ten days togetherness with my family – volcanic ash / uprising and rebellion / sick children notwithstanding.
But just when I think my life cannot get any worse – and I have felt this so many times recently and then it did – I turn on the news and know I am lucky. I may feel at times that my ground is shaking beneath my feet, but for those poor people in Japan yesterday for whom it really did they had no escape. I may feel swept away by the magnitude of the challenges facing me at the moment, but for those poor people who were swept away by the sheer force of nature they had no chance of ever overcoming it. My life is hard at the moment – harder than I ever thought possible – but there is no-one to blame. It is just life, in all it’s wonderful and cruel forms. And while there are days I struggle to get through, I am reminded by these terrible events in Japan that at least there will be another day for me. And I wish I believed in a god so I could thank her / it / him.





